Welcome to National Seizure Disorders Foundation

 Posted by at 8:21 am
 

imagesTOGETHER WE ARESSD Paw 3

“Bringing Order

to

Seizure Disorders”

 

Welcome to National Seizure Disorders Foundation, an innovative charity focused on YOU, the seizure survivor and caregiver.  We’re grateful you stopped in today to learn more whether you stopped in for:

  • Education
  • Support
  • Resources
  • Research

Meet NSDF Seizure Survivors and Caregivers

katMark and SonJesy&AnaKelly and Adriana Petrucci

Every dollar donated provides a higher quality of life for all our members.

Imagine, your loved one among our seizure survivors & caregivers.

Brynn

I Love DisneyShare Your StorySimba

Kylen

VonCharles

Lilly

Gavin

 

 

 

 

 

 

 

You would want the best support, resources, the friendliest staff, and the most giving supporters to ensure a higher quality of life, Peace, and Joy for your loved one, right?

Welcome to National Seizure Disorders Foundation, where your financial and spiritual support help us bring order to seizure disorders on a daily basis. National Seizure Disorders Foundation(NSDF) is a 501(c)3 non-profit charity recognized by the IRS.   For inquiry into proof of status, please make your  request in writing to our office at:  228 College Street  Burns TN 37029

 

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OUR MISSION

Our mission is to bring order to seizure disorders with integrity through providing online and offline resources leading to positive seizure management until a cure is found.

OUR VISION

 Our vision is to be the largest most people friendly seizure disorders foundation on the planet  serving  millions living with seizure disorders/Epilepsy ,increase thier quality of daily life,and providing the resources of positive seizure management in order to bring order to seizure disorders until a cure is found.

OUR PURPOSE

Our purpose is to bring order to seizure disorders by empowering  seizure survivors, caregivers, and professionals worldwide and  nurturing positive seizure management  while enlightening the minds of the unaffected public in order to eradicate stigma.

OUR GOALS

  • SSD logoTo enrich the lives of all people living with seizures and seizure disorders.
  • To empower seizure survivors across the nation and the globe.
  • To enlighten the minds of unaffected people globally.
  • To place qualified seizure service canines with qualified seizure survivors in order that they discover peace and a level of independence in their daily lives.
  • To provide a positive atmosphere for caregivers and help them discover they are deserving of time to heal within themselves and time to grow outside of their roles as caregivers.
  • To provide ongoing education for survivors, caregivers, and professionals.
  • To enthusiastically share positive resources with the seizure disorders community in order to become the largest most patient friendly seizure disorders foundation on the planet.

NSDF FOCUS:

  • Primarily, we ensure those living with seizures enjoy a higher quality of life. This includes offering extensive support and gifting life enhancing resources such as seizure monitors and seizure service dogs.
  • Secondarily, we ensure the general and unaffected public has the knowledge needed in order to enhance wisdom and eradicate seizure related stigma.

National Seizure Disorders Foundation is a collection of offline and online resources available to you in order to: NSDF Awareness Ribbon

  •  enhance your living experience while you manage seizures
  • bring hope and peace into your life
  • provide the most positive seizure management
  • nurture positive self image, self esteem, and inner growth
  • eradicate social stigma and end ignorance through education and awareness
  • tell the stories of seizure survivors and our collective journey to enlighten a close minded public.

What We Do:

  • NSDF puts God’s purpose for NSDF first
  • NSDF welcomes all religions  and beliefs
  • NSDF reserves the right to walk in the appointed direction set before us within the bylaws of  NSDF
  • NSDF  empowers the lives of seizure survivors, caregivers of seizure survivors, and professionals in related fields.
  • NSDF enriched the minds of the unaffected public in order to eradicate stigma regarding seizures and seizure disorders.
  • NSDF will always be open to considering the practice of benevolent acts within the seizure disorders community.
  • NSDF will always be open to considering contributing to the growth of other established charities
  • NSDF will always respect your right to privacy
  • NSDF will always encourage the nurturing of positive seizure management in every affected life.
  • NSDF will always go the extra mile to help you raise funds for resources needed to create positive seizure management.

 Jesy BearWhat We Do Not:

  • NSDF does not practice illegal, immoral, unethical, or negative practices in any form at any time
  • NSDF does not promote other businesses that practice illegal,immoral, unethical, or negative practices.
  • NSDF does not condone bullying, abuse, or spreading negative energies in the lives of seizure survivors, caregivers of seizure survivors, or professionals in the field of epileptology or related fields.
  • NSDF does not hand out money or resources with no cause to positively effect mankind and the seizure disorders community.
  • NSDF does not allow officers in NSDF Leadership to act on behalf of NSDF without prior authorization from NSDF President.

 Spend some time on The National Seizure Disorders Foundation website today. Leave a comment and get involved if you are in need of support or if you have the ability to help.

SSD JessieSit Back and Relax with the Best of the Best:

  • Seize the Day with NSDF! : Weekly online FREE internet radio shows brought to the public by BlogTalk Radio and sponsored by The Advocate of Dickson TN.
  • NSDF Community: A private online seizure survivors community where people living with seizure disorders help people living with seizure disorders.
  •  Share Your Story Project: Stories from people living with seizures, caring for those living with seizures, and remembering those lost to SUDEP.
  • Seizure Education& First Aid:Top quality information on seizures, seizure disorders, and seizure first aid.
  • Paws-4-Seizures: Discover answer you need to know about seizure service dogs and the process behind our PAWS 4 SEIZURES seizure service dog placement program

National Seizure Disorders Foundation is always open to meeting new members and considering suggestions from the global community. If you or someone you know experiences seizures , needs support, or has a positive suggestion for NSDF, please let us know.

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*Established in 2010, National Seizure Disorders Foundation is a registered charity in the state of TN with nationwide following and global reach. As of  2014 we are an IRS approved 501(c)3 non-profit charity.

  25 Responses to “Welcome to National Seizure Disorders Foundation”

  1. We are interested in the Emfit bed monitor for Ryan. He tends to wake up in the middle of the night and wander about the house. We are still not sure if this is the result of a seizure that makes him wake up or the curiosity of a 3 yr old but it is scary. Most of the time he just finds his way to our bedroom but we have found him sitting under the kitchen table before with a cut on his head and blood everywhere. Fortunately it was a small scrape and was told head wounds tend to bleed more than others.

  2. Do you help families afford a seizure monitoring device if needed?
    Amy Carter recently posted..How many times can you thank someone for saving you?

    • Amy, we do help individuals, families, and communities raise funds for seizure monitoring/detection devices and seizure service dogs. Send your need to terrifictonya@nsdf.us. You are not alone in this journey, count on National Seizure Disorders Foundation to help you bring order to the seizure disorder in your life.

      We are stronger together,

      Tonya Heathco
      National Seizure Disorders Foundation

  3. I am very confused and dont know what to make about my experience. At 40 i began having periods of absense. I was sent to a neurologist with no unusual EEG reading. After a few months the period of absence contined and the neurologist reffered me to a psychologist who diagnosed me with disassociative disorder. I continued to see him without any change in periods of absence. Then at work I suffered What seemed to be a Grand Mal and the hospital Neurologist stated it was in fact seizures and put me on Dilainant which worked for a number of months before the side effects were too serve and other new medications did not work. I was then referred to NYU hospital and it was determined after a number of tests that i suffered from seizures even without any past events before they they began and no found cause.. I was given right temperal lobe surgery and was seizure free for 5 years before the they returned with a vengence. I have been having them now for two years, one worse than the last with no medications working. Another surgery may be recommended if this continues. I am quite frightened. Can it be possible that I may be suffering from sizures and PNES. Clould one cause the other? we recently went through another battery of tests.; video/EEG( I seizured after the removal of all medicationsand)and was given an MMPI . After the tests medications were changed. I have been seizure free for a few months and have been waiting for a new event,and wonder if it will be the last? l don’t know if the Video/EEG showed a seizure or the removal of medications actually caused the seizure.. I m frighted that we are barking up the wrong tree.. I would like to know what other professional think.

    • Michael,

      We see this all too often. It is possible you can be experiencing a non-epileptic seizure disorder and Epilepsy. My thoughts are that you get examined by a neurologist specializing in seizures or an Epileptologist. Ask to have a 2-7 day VEEG ( video eeg) test at a Epilepsy Monitoring Unit near you. The video EEG will help doctors determine whether the seizures are epileptic or non-epileptic( also known as dissociative disorder or PNES or NES). It is possible the addition or taking away of any anti-epileptic drug can bring on seizures. My final thoughts are, enjoy every moment without worry of what may happen in the next moment and know that NSDF is here for you. If you are on FaceBook, I encourage you to look up our private seizure support group – NSDF Community.

      Let me know of progress,

      Tonya Heathco
      National Seizure Disorders Foundation

  4. Hi, im new to this site and have never shared my thoughts or feeling about my condition outside of my familey.

    • Bryan,

      You are accepted and loved here. NSDF is a judgement free organization. I encourage you to consider joining our private seizure support group on FaceBook . NSDF Community. NSDF Community is a judgement free safe haven in which thee are about 700 people supporting you while you journey. Questions? Let me know

      You are Loved –

      Tonya Heathco
      National Seizure Disorders Foundation

  5. a friend is raising funds for a seizure dog and want to make sure I have the correct addree
    NSDF
    228 college street
    Burns, Tennessee 37029
    as far as I understand to make sure it goes to her funds write her name in the memo line?

    • Eric,

      Thank you for your patience. Yes, the address is correct. Yes, write her name in the memo line and it will go into her fund here at NSDF, used for no other purpose that her seizure service dog. Please, let me know when the money is sent so I can keep an eye out. If you prefer, use our “Donate” button on our website and make a comment as to the name of the person to be assigned the funds.

      You are a blessing,

      Tonya Heathco
      National Seizure Disorders Foundation

  6. Too many unanswered questions & prayers I have about seizures/epilepsy that I am sure all others thought of once in their life time with seizures. I know now that after 53 years of living with them, and no hope in sight for the pattern to ever end, I see now clearly why I say my favorite bible verse is For to live is to die and to die is gain. Next may be Mark 9:29 For this kind can only be answered by prayer and fasting. Since 5 months old things still seems to be as bad or worse as I know angels like from Psalm 91 are always over me. Maybe a phone call is needed to say how & what I really feel.

    • Craig,

      Thank you for your patience. When my voice recovers from recent surgery for my own seizures, I will connect with you via email to arrange phone call. Until then, I encourage you to write out your feelings just a moment or two daily. YOu will see as you practice getting the feelings onto paper, they will leave your mind and Peace will become more apparent in your life.

      God Bless -

      Tonya Heathco
      National Seizure Disorders Foundation

  7. I have a rare diease that was found in 2007. I get tumors on my brain. I have sezuires if I get a UTI, stomach bug and other things. I just recieved disability. I have medicaid and medicare. I just got an apartment for me and my daughter. I havent spendt 1 night alone because I am scared that i may have a sezuire. I have a condition that I smell and taste metal. It is called Ora. It is mini sezuires. I just had them 3 days in a row almost all day. People can tell that something is wrong. I ask weird questions and dont know where I am at. I just want a dog to comfort me always. I tell everyone that a service dog would make me feel like I have a doctor with me all times and I am safe. I was just wondering how can I get help to get a service dog soon. Thank you for your time.

    • Chaisity,

      I will reply privately to the email you supplied us. I know there is more to your story and I want you to know through NSDF you have the opportunity to help others through telling your story. Let’s make time this week to talk. Look for an email from terrifictonya@nsdf.us soon.

      May You Be Well -

      Tonya

  8. What apps do you reccomended for tracking…both on iTunes and google

  9. I would like to know more about the seizure monitors. I have had a seizure disorder for over 46 years. Thank you!!!

    • Denyce, The monitors pick up seizure activity as you would find in Gran Mal or Tonic Clonic seizures. The monitors can be worn at the wrist much like a watch or left on the mattress for those that experience nocturnal seizures. The monitors help you and your doctor manage the seizures, they do not prevent seizures or control them. NSDF recommends Emfit Monitors and Smart Watch Monitors as well as SAMi Monitors. Please et us know how we can better serve you.
      May You be at Ease –
      Tonya Heathco, Founder
      National Seizure Disorders Foundation

    • Denyce, I beleive I answered this privately. Please let me know you received the information you need. It was sent to the email address you submitted.

  10. I feel that N.S.D.F do a lot of good work for peoples like us. I know that they or way need help I am think about payment them my member ship fee? they got bills I feel that the dog being done with the training dogs is another big step forward I heard It is happen in nz now but I feel that it is a good thing to give to from Brian Craven

  11. I was just curious to find out what other grants are available to help pay medical bills incurred during treatment for seizures. I have gotten grants through my union and applied for the J. Kiffin Penry Travel Assistance Fund to help with travel to and from my doctor who is 2 hours away. Thank you.

  12. Browse through the pages of National Seizure Disorders Foundation website and please leave a comment when you have questions, need support/assistance, or have a burning desire to help NSDF ensure a higher quality of life for those living with seizures.

    Peace -
    Tonya Heathco,Founder
    National Seizure Disorders Foundation

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