National Seizure Disorders Foundation is a 501(c)3 Non-Profit Organization bringing order to seizure disorders since 2010.
National Seizure Disorders Foundation Share Your Story project presents a heartfelt memorial to Carolina Barcelos Carneiro de Oliveira Miller, lost to SUDEP at the young age of 25. Her husband Eric Miller brings us her story and what he did to cope with the grief and hold her memory in our hearts for a lifetime.
SUDEP is a medical mystery in which sudden unexpected death in epilepsy patients takes the lives of our loved ones for no apparent reason. At this time there is no warning sign or trigger, no cure, and little research for SUDEP.
Eric shares how he dealt with losing Carolina to SUDEP:
“Since Carolina’s passing, I’ve really thrown myself into working on Candlelight Concert in her honor. It’s certainly a difficult and tragic thing to be torn in half like that. And so I’ve diligently been working to raise awareness about epilepsy and specifically SUDEP in the hopes that no one else would ever experience such an immense and tragic loss. ”
Find out more about Carolina and her memorial,Candlelight Concert HERE
Tell Your Seizure Disorders Story,
Eradicate Social Stigma
Share Your Story Project is an ongoing project presented by National Seizure Disorders Foundation helping seizure patients, caregivers, and professionals share their stories with the world in order to eradicate social stigma. If you are a seizure patient, caregiver, or professional and would like to share your story, please contact Tonya Heathco at TerrificTonya@nsdf.us for details.
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