Nov 012011
 

Be Aware and Be the Cure

 

Many wonder, “When is National Epilepsy Awareness month?” To clear the confusion,please read on….

November is National Epilepsy Awareness month. As the influence grows around the country and in the hearts and minds of  every man, woman, and child across this nation we will soon see National Epilepsy Awareness month conveniently marked on our calendars.

 

Why is it important to become aware of epilepsy/ seizure disorders, and seizures?  Because reports show 1 person  every 4 minutes is diagnosed with epilepsy. Would you know what to do  if you were given the diagnosis for yourself, your child, or a friend/loved one? Where would you turn for the right answers?  Would you be treated with kindness, respect, and honor  you deserve? These are all valid questions.    The National Seizure Disorders Foundation pledges to do our utmost to meet each individuals need in order that they be able to adjust with ease and live in peace with their new diagnosis. After all, it is a diagnosis and not a death sentence.

What is done during National Epilepsy Awareness Month? Across the country many people individually or as a group get creative and share their respect for epilepsy awareness by wearing purple or lavender. Some wear the color in their hair, others wear ribbons, and still others get very creative by wearing  colored statements on T-Shirts proclaiming their passion for victory over seizures/epilepsy.  There is no standard. The point is to make  some noise in any creative way that will attract attention of the general public in order to create awareness and educate those in need while accepting those that are a part of the epilepsy community.

Lavender

Why purple/lavender ? Either color represents epilepsy awareness since ancient times. It’s been recorded Vincent Van-Gough used the color Lavender to ease his seizures. He would paint in lavender during the onset of a seizure and supposedly ease the severity of the seizure. Also, many have reported the scent of lavender being very useful in seizure management.

What is National Seizure Disorders Foundation doing to recognize National Epilepsy Awareness Month?  

  • NSDF has arranged proclamations with local government for our area to recognize seizures, seizure disorders, and proper seizure first aid.
  • NSDF is working with volunteers local and nationwide to raise funds and awareness for Epilepsy/seizure disorders.
  • NSDF is putting into action NSDF Presents… Our first weekly internet radio show!
  • NSDF Officials are honored to be guest speakers at local community clubs to raise awareness of seizures and seizure disorders
  • NSDF is bringing our readers quality education, inspiration, and support.  NSDF is putting NSDF Doggy Dollars Campaign in full gear. This will allow National Seizure Disorders Foundation to place seizure alert canines with seizure patients in record time. Our goal through this campaign is to place two pups a year with qualified seizure survivors.

Will you be a part of  this campaign?

  Our mission is to become the largest most  people-friendly seizure disorders foundation on this planet.  With the help of all of our readers, we will meet our mission.  You have a choice this November, you can choose to become a part of our movement or you can choose to thread the murky waters of desperation and continue looking for the support you deserve.

Special Recognition:

Thank you to the Mayors  of  Burns TN( Jeff Bishop), Dickson TN( Don Weiss), White Bluff( Linda Hayes), and Dickson County TN ( Bob Rial) for their care and concern to proclaim  November as Epilepsy Awareness Month for city of  Dickson, towns of Burns and White Bluff, and the county of Dickson.  Next year I look forward to having these pillars of our community reach out to encourage other government officials in TN  to proclaim November as Epilepsy Awareness Month in their respective locations.

Special mention to the following businesses and professionals nationwide that continue to support NSDF and our mission:

Which will it be for YOU this November?

What ideas have you to promote National Epilepsy Awareness Month? Please leave a comment below telling us what you will be doing to promote awareness  during November.  Maybe the most convenient idea for you would be to give to our worthy cause by using the donate button and continue your awareness by visiting often to learn more about seizures and seizure disorders.  Whatever you choose, we welcome comments and questions. Your voice is heard and respected here.

Please Share Your Thoughts and Pass This On…

Founder, NSDF

Founder – National Seizure Disorders Foundation

Terrific Tonya Heathco, Founder NSDF

  17 Responses to “November: National Epilepsy Awareness Month”

  1. […] November is National Epilepsy Awareness month. As the influence grows around the country and in the hearts and minds of every man, woman, and child across this nation we will soon see National Epilepsy Awareness month conveniently marked on our calendars. Read what National Seizure Disorders Foundation has to offer about Epilepsy/seizure disorder Awareness and National Epilepsy Awareness Month HERE […]

  2. I am Lynsay and I have had epilepsy most of my life. For 18 years I listened to doctors, took pills, and had 2 brain surgeries. I had an ovarian cyst at 21 and emergency surgery, two miscarriages, teeth moved and braces, weight gain and loss, and various mood disorders. I would love to do something to raise awareness about the problems with pills. Like my neurologist told me he only is given pills to use. Would you like to do something together to raise more awareness?

    • Lynsay,

      We welcome passionate volunteers with a desire to raise awareness. When you speak of the “problem with pills” do you speak of the side effects? I will contact you privately so we will be able to exchange contact information and move forward raising awareness in order that people affected by seizure disorder may live a higher quality of daily living.

      I appreciate your comment,

      Tonya Heathco
      National Seizure Disorders Foundation

  3. Im 17 years old and have been having two different types uncontrollable seizures since i was 11. I have always been embarrassed of them because people like to think they are funny. I want more research done and more awareness so In november i am planning to do a fundraiser at my high school to raise awareness and donate to the cause.

  4. I am so happy to find out that there are persons out there willing to educate the public on Epilepsy Awareness, because since I was diagnosed some years back, I had to do my own research and teach myself about it. Where I am from, The Bahamas, people are very unaware of it…. as a matter of fact.. since I was diagnosed, I had no idea what it was about. Now that I’m aware I find myself automatically trying to teach people about it because ‘they are afraid of what they don’t know’ . It was extremely frustrating in the beginning for me because I felt so alone, but years later, (now that I am more educated on the subject), I fear it no longer (& not so embarrassed at persons reactions) especially my family… I thank you for this foundation, please continue doing what your doing, yes your even an inspiration to me down here in the Bahamas. Thank you! Mrs. Heathco.

    • Tee-

      I’m so happy to hear from you and honored to read your words of encouragement.
      I do what I do through National Seizure Disorders Foundation for YOU and 65 million others! Yes, you are not alone. Count on NSDF for support, education, and inspiration. Spend time here often to read the stories, watch the videos, and catch up on the articles. Feel free to connect with us on FaceBook for added support through NSDF Community and from me directly.

      I am so proud of you!

      Peace and Love -

      Tonya Heathco, Founder&CEO
      National Seizure Disorders Foundation

  5. Where do I sign up to get a seizure detection dog for my daughter? She has Doose Syndrome, her seizures have not patterns and are unresponsive to medication. The doctor is suggesting vns.

    • Allison, Please understand NSDF will help you find the right dog for your daughter. However, we do not board them yet. We point you to several resources of breeders and trainers and we help you raise funds for seizure service dog. My advice for something you can do today to get this underway is write out a letter as to why she needs a dog ( specifically – many trainers will not know what Doose is), what you expect the dog to do for her, and what you plan to do in turn for NSDF. Also, begin to write down all fundraising ideas you can consider. No need for action in this area yet, just write out ideas. Finally, write out a budget showing your family can afford a seizure service dog. NSDF plans to help you with some cost, but ongoing costs for a seizure service dog range between 100-150 dollars a month for food, vetting, training maintenance, and other needed items. Feel free to connect with me on FaceBook http://www.facebook.com/tntonya and I will add you to our private seizure support community NSDF Community for ongoing support you need. VNS has been a life saver for many seizure survivors. Please consider all aspects and when you are comfortable with the medical staff, the functions of VNS, and with your daughters creator, the decision for VNS will be easier. Once we connect outside of this thread, I will steer you in the direction of a few seizure service dog trainers.

      Feel Peace in this moment,

      Terrific Tonya Heathco, Founder
      National Seizure Disorders Foundation
      Terrific Tonya Heathco recently posted..NSDF Newsletter October 2012

  6. I’m fairly new to all this, my son had his first grand mal seizure on Christmas Day 2011 at the age of 2.5. Since then I had another baby boy in March and after that Brodie my oldest was in and out of hospitals, I say Hospitals because I think I’m on number 4 for getting “second opion”. We are now with Boston Chirldens Hopstial. He has been diagonised with Myclonic, Atonic and Absence seizures as well as Status Epilepsy. It seems like here in Upstate Ny we don’t have much awareness and at times I don’t even want to leave my house b/c brodie has seizures everyday and people are not use to it around here. I know of 3 people one of them their child grew out of the epilepsy and the other 2 it is going to be a life long battle. I don’t would like to think that my son will grow out of his as well but he isn’t responding to the medications still having break through seizures. I want to take a stand and get the word out but need a little guidence.

    • I am planning a awareness walk in my community to get the word out!!

    • Angie,

      You are not alone on this journey. NSDF is here for you and your son. NSDF Community (on Facebook) is here for you as a private seizure support community. Look us up and ask to join. If help is needed with this, please let me know.

      As for the awareness walk, let’s get together and talk about your specific needs. Email me(nsdf37029@gmail.com) a good day and time and phone number and I will give you a call.

      Has your son been examined by an epileptologist? Has he undergone VEEG testing? These will help you find the cause and bring some peace into the situation. Knowing the types of seizures is great, but knowing the cause is even more powerful.

      Please connect again and help us help you -

      Terrific Tonya Heathco,Founder
      National Seizure Disorders Foundation
      NSDF Community
      Terrific Tonya Heathco recently posted..Seizure Experience: Through a Mother’s Eyes

  7. [...] with seizures since he was ten years old so when I heard about National Epilepsy Awareness Month on Tonya Heathco’s blog I had to pass it on to [...]

  8. My oldest son has been having seizures on and off for about eight years now and there aren’t any doctor’s in the military system that can seem to come up with an idea as to what is causing them or how best to control them. He has been pushing through his medication and has had three since we returned home from Afghanistan. I am fully supporting your cause and will republish your message on my blog tonight as well.
    Clint Butler recently posted..The Empower Network Is Live!!

    • Clint,

      My best advice is to urge the military doctors to release him to the care of an epileptologist local to you. If you need help locating one in your area, please let me know. I feel your frustration and want you to know that you are not alone. Millions of caregivers have gone through and are going through the same frustration with the medical community. Do your part in his seizure management by keeping a comprehensive seizure journal and when available, video his seizures to be reviewed by the doctors. The solution is to find the correct diagnosis instead of pouring pills into his system. He may be one that requires medication the rest of his life. Even then there is hope. He may be one that is able to heal after correct diagnosis and treatment. Please know I am available when you or your family need phone support or assistance finding the right doctor for your son. Please keep in touch to report his progress.

      Peace&Power -
      Terrific Tonya Heathco
      National Seizure Disorders Foundation
      Terrific Tonya Heathco recently posted..NSDF presents “Share Your Story” with Terrific Tonya Heathco

  9. As an advocate of the Anita Kaufmann Foundation I will distibuting data, purple bracelets, pins, and more through the town & surrounding towns to Educate the Public NOT to Fear Epilepsy. We will also be holding safety classes for free to teach other what the proper things are to do when someone has a seizure/epilepsy. I am out to help the future generations and to do what is needed to get this stigma removed from those with epilepsy (I am one).

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