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NSDF Newsletter May 2012


Living with Seizure Disorder

May 2012

 Welcome friends to the newsletter for you! Living with Seizure Disorder is designed with you in mind and future editions will have your voice – thoughts and ideas right from the seizure disorders community. Sit back and enjoy.

“When you feel like giving up, remember why you held on for so long in the first place.”~ Unknown

Exercise of the Month: Our exercises are inspired by a group I attend at, thank you to Millymouse1 and Emmabe1 for creating Chair Exercise team at Sparkspeople and making this exercise available:  Seated Upper Body Toning Workout

Did You Know? Antiepileptic drugs (AEDs) associated with weight loss are: felbamate(Felbatol), topiramate(Topomax,Topiragen), and zonisamide(Zonegran). AEDs associated with weight gain are: gabapentin(Fanatrex,Gabarone,Gralise,Horizant,Neurontin) pregabalin(Lyrica), valproic acid(Depakene,Depakote,Epilim,Stavzor), and vigabatrin(Sabril) and possibly,carbamazepine(Carbatrol,Tegretol,Epitol,Equetro). Weight neutral AEDs are lamotrigine(Lamictal), levetiracetam(Keppra), and phenytoin(Dilantin,Di-Phen,Phenytek).


Question of the Month: What type of seizure is described here: The person will stare (as they would in any absence seizure) but often is somewhat responsive. Eye blinking or slight jerking movements of the lips may occur . The answer is found HERE.

“Believe you can and you’re halfway there.”~Theodore Roosevelt

 May Fundraiser: Feel free to explore our fundraiser and pass the link to all your contacts. The focus of this fundraiser is to place 100 seizure service canines with 100 seizure survivors by November 11,2013. Will we make it? Well, that is up to you and every person viewing our fundraiser:


 Canines are waiting today to begin working with seizure survivors. Your help is needed today. Your donations are appreciated as well as your action to pass the link for this fundraiser to all your contacts.

Journal Jabber: When I suggest to seizure survivors and caregivers to make journaling a priority I am often asked “What information should be written into a seizure journal?” Today I will bring you an effective way to keep a seizure journal:

  1. The first page or section of your journal should include specific descriptions of each aura and seizure you, the seizure survivor, experience. I encourage you to get input from everyone witnessing these episodes. Don’t worry about naming the seizures at this time. For your journal you will label each seizure description A-Z. Events you are unsure of, give them a letter also.

  2. As you experience seizure events including auras and other seizure like events, write the date, the letter of description and a hash mark to represent how many of these specific event you have on that day. Example – seizure A four times a day – A-llll If no seizure events occur during a full day, happily place a big “0” on that date.

  3. Keep your journal up to date and bring it with you to all relevant doctors appointments. Relevant doctors would be your primary physician, therapist, mental health expert, neurologist, epileptologist.

Tip: a seizure journal can be complied in a regular notebook, calendar, journal,video or a combination of these tools.

 Resources for You

National Seizure Disorders Foundation

Positive Seizure Management Team


NSDF Library of Knowledge

NSDF Information Station

Your thoughts are important to National Seizure Disorders Foundation. What would you like to see in future newsletters from NSDF? Please let us know as we plan for these newsletters to become a powerful tool for your positive seizure management.

Peace and Power,

Founder, NSDF
Founder - National Seizure Disorders Foundation




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