One facet of the National Seizure Disorders Foundation mission is to help children adjust seizure disorders in their own lives or lives of people around them. The following information explains how you can help NSDF help children adjust to seizures and seizure disorders.
Are You Ready to Help?
- Do you know of a small child living with a seizure disorder?
- How comfortable is this child in sharing his/her experience with peers?
- Are you currently looking for a tool that will ease this child’s understanding of seizure disorders in order that he/she may feel more empowered and comfortable to overcome stigma placed upon the seizure disorders community by society?
FACT: 45,000 children develop seizure disorders each year
This fact prompts the need for creative material to explain their disorder to their peers. Mommy, I Feel Funny! is a true story that helps children adjust to seizures by relating to children at their level and sharing some of the same experiences they may have as they experience seizures and seizure disorders. National Seizure Disorders Foundation recommends that Mommy, I Feel Funny! be used in public and private elementary schools across America as well as pediatricians offices and private homes of pediatric seizure patients.
Looking for a Quality resource to help a child adjust to seizure disorder?
You Need Look no Further!
Todays’ post introduces our readers to another way NSDF is helping children adjust to seizure disorder. National Seizure Disorders Foundation is dedicated to bringing the seizure disorder community quality reading material.
Mommy, I Feel Funny: A Child’s Experience with Epilepsy
Based on a true story, Mommy, I Feel Funny! introduces the reader to Nel, a little girl who is diagnosed with epilepsy. The story takes you through the days following Nels first seizure. Suddenly, Nel and her family are faced with thoughts, fears and emotions that come with the discovery, understanding and acceptance of epilepsy.
Easy to Order:
Visit the NSDF Library of Knowledge and place your order today. Bulk orders of 100 or more are possible! If you intend to order in bulk, please leave a comment referring to bulk order below and we will connect with you soon.
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Read these Raving Reviews:
“As the parents of an epileptic child, this book offers a window into our sons world. Through simple but thorough explanations, we learn what Nel experiences when she has a seizure, visits her doctor and has testing done. Every child with epilepsy and parent of a child with epilepsy should hear this story.”
-Rob and Lisa Moss, Founders, seizuretracker.com
Danielle,
You have given me hope that all of this will be in the past someday. Your book [Mommy, I Feel Funny!] has told me “No, you’re not the only one with seizures.” I can honestly say if I didn’t write you that first letter, I don’t know where I would be with this. You taught me how to be strong. You encouraged me to never give up. You are an amazing person and your book will go far! You are one of the few people I can completely relate to when it comes to having epilepsy and it will be great for young children experiencing the challenge to read your book.
All My Love,
Kristy M. Derrick
I purchased this book to read with my son who does not have epilepsy. It is very well written to explain what epilepsy is and how someone feels if they have it. Both my son and I loved the book. You don’t need to have epilepsy to read this book. It help both myself and my son to understand what epilepsy is. I would recommend this book to everyone. – S. Worthley
“A delightful and inspirational story about a girl who refuses to let epilepsy interfere with her life. It is a joyful and cherished resource for helping children understand epilepsy.”
-Dr. Warren D. Spinner, Neurology, Epilepsy, Neurophysiology, Clinical Assistant Instructor, Department of Neurology, Stony Brook University Medical Center
Please Post Your Comment Below
Founder, National Seizure Disorders Foundation
What a wonderful public service you provide here Tonya. I look forward to seeing more of your work in the near future.
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Tonya,
That’s really great to have a resource for children…
My son has epilepsy since he was 1 and thank God, his very last EEG came back normal
and we are weening him off his prescription….
I know how tough it is for parents and the children, especially when it comes to things like seizure disorder, which we truly don’t have a clear understanding of….
Thanks so much for informing people about this.
Best Regards,
James
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Thank you for the comment James and for sharing with our readers. NSDF is swiftly growing into a leader in the field of seizure disorder support and awareness. With support from good friends and loyal readers NSDF moves forward with our mission daily. I’m so glad to hear your son has his seizures managed well. If ever you need NSDF in the future, just reach out.
Many Blessings -
Terrific Tonya Heathco
National Seizure Disorders Foundation
Hi Tonya:
What a great resource! Our oldest daughter had childhood seizures and it was scary time. Thankfully she has outgrown them now.
Kevin
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Watching your own child experience seizures is one of the scariest experiences of being a parent. National Seizure Disorders Foundation id focused on helping parents and their children(new to seizures) adjust to the management of their life with seizures. I’m so happy to hear your angel no longer has seizures in her life. Thank you for sharing with our readers.
Blessings -
Terrific Tonya Heathco
National Seizure Disorders Foundation
Tonya,
this is a wonderful tool to get the message out to the masses. This can be purchased by schools of all ages and hospital programs. This even has the impact on the local places that have day care for our children in Massachusetts and all states.
This has been a wonderful and educational post. I have been encourage to reach-out to more families of children and make them aware of this information. This is going to be a blessing to all. What a wonderful thing you do.
Tonya, looking forward in learning and growing with you. Thanks for care for our loved ones.
Thank you for the quality comment ! Together we will make a difference in the lives of many. I encourage all who read this to pass the information on to their local schools, hospitals, churches, and neurology specialists offices. Information like this is one of the keys to eradicating the stigma surrounding the seizure disorders community. Contact me when you need more information on getting the information to the right people.
Love&Healing-
Terrific Tonya
National Seizure Disorders Foundation
What an awesome title, something that would catch people’s attention! With a subject like this it is definitely important to catch people’s attention.
You are providing such a wonderful service with this blog, I applaud you!
Carla, thank you for your comment. You can be part of the cure for seizure disorders by getting this information in front of the people of influence in your local school system and medical facilities. When you are ready to help me with this, please let me know and together we will make a difference.
Peace -
Terrific Tonya Heathco
National Seizure Disorders Foundation
Hello Tonya,
Sadie in France here,
I think you are doing a fantastic job of bring this subject to the attention of others who might not other wise have any exposure to if. I has quite shocked by the numbers of children affected each year.
My sister in law is now a women of 35 but after a bicycle accident as a child of 9 she has lived with the condition of epilepsy from that age, it can be quite frightening to experience seizures if one has no exposure to them.
Sadie
Sadie,
Thank you for your comment.
National Seizure Disorders Foundation has a library full of resources introducing people to seizure disorders and helping patients and caregivers adjust to their diagnosis.
When National Seizure Disorders Foundation began it was with the intention to help people like your sister in law find peace living with a disorder that the general public is afraid to address. Soon, our name will be global and we will be the force that helps over 60 million worldwide living with seizures.
You are a Blessing-
Terrific Tonya Heathco
National Seizure Disorders Foundation
Tonya,
This is such an important part of helping children to understand what is happening to them. When I was a child and had my tonsel removed nothing was explained to me of what would happen. Many years later I still have a problem when I need to have surgry done. You are doing wonderful work for people who suffer from a disorder that can be controled but needs to be understood too.
Joyce, Thank you for sharing a part of your story in your comment.
One of the reasons National Seizure Disorders Foundation is so important is for the support and education of the 45,000 children that get diagnosed annually. National Seizure Disorders Foundation bridges the gap between fear and freedom in the lives of seizure patients, caregivers, and professionals providing them with much needed support, unconditional love, and social stability until a cure is found. You can be a part of this movement by getting the information in this blog out to your local school system, hospitals, and churches. Together we will bring order to seizure disorders. When you are ready to help , please let me know.
Peace-
Terrific Tonya Heathco
National Seizure Disorders Foundation
Hi Tonya,
What a great idea for children, not only for children who have the problem but for others to better understand differences in their playmates, their friends and people in general. I wonder if there are many children’s books like this? Either way, kudos to the author and kudos to you for spreading the word.
Linnea, Thank you for the comment. You and others can find many books on the subject at http://astore.amazon.com/natioseizudis-20 Feel free to pass this link on to your friends and followers in order that everyone you know will be prepared should they need this information.
Blessings-
Terrific Tonya Heathco
National Seizure Disorders Foundation
Oh Tanya, this sounds like such a lovely book. My grand-nephew (man, that sounds scarey, huh?!) is an avid reader and just the right age for this. I think this would make a lovely gift for him. Thanks as always for the valuable information and inspiration!
Any child would enjoy this book and benefit from the education. The book is written by one of our own NSDF Community members as is another you may be interested in purchasing:http://nationalseizuredisordersfoundation.org/nsdf-helps-children/
Thank you for the quality comment. Let me know how I may help you in ordering the books if assistance is needed.
Blessings -
Terrific Tonya Heathco
National Seizure Disorders Foundation