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NSDF Hero: Glenn Fenster

Introducing NSDF Hero Glenn Fenster:

When was the last time you read a truly heroic and inspiring story about one mans efforts to spread seizure disorder(epilepsy) awareness? Get comfortable while National Seizure Disorders Foundation brings you the true story of Glenn Fenster, a real American hero on a mission to spread awareness of seizure disorders.

NSDF Hero 2011Glenn A Fenster is the founder of “DestinyMaker-Helping Children and Adults with Epilepsy“. An has the honor of being recognized as National Seizure Disorders Foundation Hero of 2011. Sports have always been a part of Glenn’s Life, including a Try-Out for the Florida Marlins. Moving to South Florida in 1983, Glenn started playing tennis seriously in 1989, and for 22 years has taught tennis. Glenn started cycling in 2003 and has not driven a car since.

Why is Glenn Fenster a NSDF Hero?

Glenn has a personal mission to spread awareness of seizure disorders (epilepsy) and has chosen a unique method in which to live out his mission.  He travels across America thousands of miles annually spreading awareness of epilepsy and sharing his story with everyone he meets. Glenn’s son Nyle, at age 2, began having seizures so Glenn knows the challenge of being a parent to a seizure patient as well as a caregiver to a small child with seizures. Nyle, now has controlled epilepsy yet Glenn still rides on telling everyone he meets across America his story and how they can help the seizure disorder community become free of stigma and shame.

What is Glenn doing in 2013?

He continues to spread awareness while running marathons in chosen locations throughout the nation. He is a true seizure disorder advocate warrior! While he runs, he raises awareness for millions of Americans currently living with seizures, for future seizure survivors, and for those lost to seizures unexpectedly(SUDEP).  Read more about Glenn’s journey HERE

Glenn shares word of encouragement along his journey:

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Has our hero made an impact that motivated you to make a difference? Let us know by leaving a comment below. To follow Glenn Fenster on his journey each year, visit DestinyMaker or comment below and we’ll send you a schedule.

Bringing Order to Seizure DisordersNational Seizure Disorders Foundation is honored to have people like Glenn helping us  raise awareness to eradicate stigma from society about epilepsy/seizure disorders. Would you like to help us in our efforts? Let us know.  For more information on seizure disorders and how you can make a difference, leave post questions in the comment section below. National Seizure Disorders Foundation will hear your voice and respond with understanding and love as soon as possible.

What defines a National Seizure Disorders Foundation Hero?

Any person or organization stepping out of the definition society has for them to become more; promote seizure awareness, become an inspiration to the seizure disorder community, and motivate seizure disorder patient, caregivers, and professionals to bring more positive energy into their own lives.

President&Founder, National Seizure Disorders Foundation




19 Responses to NSDF Hero: Glenn Fenster

  1. I must say that I enjoyed the show, but especially when I found out how much that you have been going through that I never knew before. I am so sorry to hear (finally) about your daughter. The other thing was that I had been through the same as Glenn, yet not as much, back in the late 70′s & early 80′s, as written in my book “Have Thumb, Will Travel:A Samaritan’s Walk”. It is about my hitching across America 4 times to prove to everyone (and myself ) that epilepsy is not a handicap, but a disability which I used as a catalyst.But when I got married it was time to become responsible and hang up my traveling shoes.

    • John,

      Thank you for your words of kindness. Each day National Seizure Disorders Foundation is growing into the largest most people friendly seizure disorders foundation on the planet. My daughters passing is part of the passion that keeps me going and NSDF growing. As funds rise we will soon be placing Emfit monitors and seizure service dogs in homes of seizure survivors in order to lessen risk of SUDEP and enhance quality of life. You are a great example of what one can do no matter what the different ability!

      With Gratitude -

      Tonya Heathco, CEO
      National Seizure Disorders Foundation

  2. Great review! You actually touched some nice things in this post. I came across it by using Google and I’ve got to admit that I already subscribed to the site, it’s very great :) btw Plase check my free ipad 2 blog, hope you will find interesting information about free ipad 2 there!

    • Come back often or better yet, subscribe via RSS and keep up with the inspiring, educating, and motivating posts at National Seizure Disorders Foundation. When ready to take action an be a part of our supporters, let me know.

      Thank you,
      Terrific Tonya Heathco
      National Seizure Disorders Foundation

    • Marquita,

      Glenn makes the journey every year thousands of miles to tell others about seizures. NSDF is currently working a plan to support him in the 2012 trip. If you would like to be a part of helping NSDF and Glenn Fenster, you and I will get together and talk over the details. Just drop me a note and let me know.

      You are loved -

      Terrific Tonya

  3. Tonya,
    you are to be congratulated on the selfless work you are undertaking raising awareness for this condition. As Steve says above, it is tough enough to move through life without these obstacles! You are going to be very successful with your foundation, I am sure of that. You are being guided by your Faith! I am grateful to have met you!

    Be blessed

    • Clare,
      You and other Angels are among the reasons I keep moving forward toward the fruition of the mission of NSDF. I am honored and blessed to have you as a business associate and friend. Thank you for your kind words.

      Your voice has been heard -
      Terrific Tonya

  4. This is indeed an inspirational article. We sometimes have the tendency to complain about this and that in our lives, and yet these obstacles we face are nothing compared to what others have to deal with, day in day out.

    Thank you for putting things into perspective and bravo Glenn Fenster.

    Keep the Smiles,


    • Stevie,
      You are a blessing in my life. There’s still so much work to be done and we are getting there with help from our friends. Thank you for the compliment on the article. As the old song goes , Baby,you ain’t seen nuthin yet….

      Always smiling -
      Terrific Tonya

  5. Wow Tanya people like this really restore my faith in humanity. To be so selfless and devoted to something you believe in is very inspiring. Me I cant help but think of this in a business sense how if people would stick to their guns in what they believed in and how it could help others how they and the world would be better off.


    • Steve, Glad to be a part of a cause that moved your heart. Connect with me anytime when you are ready to join forces with NSDF to make the world a place of peace. Your comment is an honor.

      Looking forward to connecting soon -
      Terrific Tonya Heathco

  6. Tonya, this is amazing and inspiring. Giving me insight to continue on course.

    This is fantastic and this time in my life. Having a deep emotional impact with me.

    I agree, going after your dreams is a continuous journey. Never stop dreaming. Then take action to empower yourself to getting things done daily. This will bring you closer to reaching each goal.

    I am given a blessing with watching the video and having people like yourself, Tonya. Involved in my life. This is motivation at it’s highest level. Thank you for all you do and continue to educate the masses on this struggle. It makes everything easier.

    Your a true visionary and I am glade for this site. All the people involved in the cause are just wonderful, and passionate people. I look forward in getting back in the swing of things next month.

    • The Leadership of National Seizure Disorders Foundation is honored to have you working with us in any capacity. I am personally honored to call you friend. Thank you for the heartfelt comment. I look forward to connecting soon.

      Blessings -
      Terrific Tonya Heathco

  7. Terrific Tonya….I take my hat off to you and Glenn Fenster for the fabulous work you are both doing to raise awareness for NSDF. My grandfather suffered seizures for the rest of his life following an injury during WWII, so I know how difficult a condition this is to live with. It must be heartbreaking to see your own child struggle with this. You are an inspiration!

    • Louise,
      To this day many of the people that fight for our freedom live the rest of their days fighting seizure disorders brought on by PTSD or by wartime injuries. I plan to have an article written soon saluting the heroes that are now seizure patients. Thank you for your comment and compliment. Return often for more information and education.

      Blessings -
      Terrific Tonya Heathco

  8. Wow, Thank you Terrific Tonya and thank you Glen Fenster, two of my personal heroes.

    I work 1:1 daily with a dear friend and client who heroically steps up to life’s plate on and manages his seizure disorder as if it where are little speed bump on his journey, and it is leaders like Terrific Tonya Heathco and others in the National Seizure Disorders Foundation community whom I look to and ask for guidance as a caregiver.

    You all inspire me to keep giving my gifts to those who are so very worthy.


    David H. Paul

    • David, You and others in the seizure disorders community are what keep me passionate about moving forward with this cause. Speaking for Glenn and myself; thank you for your kind words and keep spreading the good news.

      Blessings -
      Terrific Tonya Heathco

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