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Welcome friend, National Seizure Disorders Foundation is dedicated to offering you quality information and support through our website. Here you will find interesting and informative articles, personal stories, and a forum ready for your involvement. You are free to post ideas for new material should you want to know more about a specific seizure disorder related topic yet to be written. Brew something delicious to drink, slip into a comfortable chair, and enjoy all areas of the National Seizure Disorders Foundation website.
Begin Here
In order to utilize this site effectively it is important to Become a Member. The first step to becoming a member is to register. Register right over here. ——–>>>>>>
Membership is free and members are offered top quality information within the site, commenting privileges, access to our forum, and so much more. Let us know who you are so we can serve you with love and acceptance.
Our Mission Statement
“National Seizure Disorders Foundation brings order to seizure disorders by transforming the lives of the seizure disorders affected until a cure is found”
Medical Disclaimer
No information posted within this website should be construed as medical advice. The staff of National Seizure Disorders Foundation are not medical professionals. The information provided here is for support and information only. Documents, comments, videos, photos, etc. posted on this site by members do not necessarily reflect the views National Seizure Disorders Foundation staff. Before making any changes in your care, contact your health care professional.
What will you find within this website?
- Informative and educational articles and videos
- Personal accounts from seizure patients and caregivers
- Forum geared toward supporting seizure disorder patients and their care givers
What can you do within this website?
- Connect with us on popular social network
- Subscribe to RSS feed to catch up on the latest happenings at N.S.D.F.
- Sign up for access to the latest in seizure disorder support
- Submit your own story of life with seizure disorders within the forum
Use this site to find out information on how you can become a part of something bigger by:
- educating yourself
- donating to N.S.D.F.
- volunteering for local events
- raising awareness of seizure disorders
National Seizure Disorders Events:
March 15, 2011 - Grand Opening N.S.D.F. website
March 26, 2011 - Purple Day Observed
March 2011-April2011 – Chocolates for Charity online event
March 2011- Paws 4 Elijah campaign begins
Events for May through December will be announced as they are planned. Visit often for updates
National Seizure Disorders Foundation News
Jan 2011: Amanda Heathco becomes first N.S.D.F. Staff volunteer and is assigned duties of coordinating Car Wash Fundraiser for the summer
Feb 2011: Mayor Jeff Bishop of Burns, TN, signed proclamation for Burns Epilepsy Awareness Month, November 2011
Feb 2011: David H. Paul of Neo Training Network volunteers his time, energy, and talent as N.S.D.F. webmaster.
Feb 2011: Tracy L. Karol of Tracy L Karol’s Writer’s Buzz volunteers her time, energy, and talent as N.S.D.F. website editor.
March 2011: National Seizure Disorders Foundation website becomes a charity of hope for seizure patients and caregivers online.
March 2011: N.S.D.F. Board of Directors takes shape. Announcements soon to follow.
March 2011: Chocolates for Charity online fundraiser begins read more in the upcoming post
March 2011: N.S.D.F. first community effort, Paws 4 Elijah takes shape. See more on the Paws4Elijah post.
May 2011: Caregiver Scott Heathco assumes position as Treasurer for N.S.D.F.
May 2011: N.S.D.F. opens Caring 4 Caregivers, a unique program allowing caregivers a helping hand when needed in order that they be able to care for seizure patients most effectively and without undue stress. More information will be available soon on the National Seizure Disorders Foundation website.
39 Responses to “NSDF Welcomes You”
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This website looks great Tonya – You are doing a fantastic job – Keep up the good work -
We look forward to working with you guys in the future – Kudos -
“Diana’s Dream – the Neurological Foundation of the Ozarks”
Thank you Stan. We look forward to working with you in the near future also. Working together is the only way we’ll be able to create an impact strong enough to make a long lasting change in the seizure disorders community. Thank you for visiting and for commenting. Please reach out as often as you desire.
Terrific Tonya Heathco
National Seizure Disorders Foundation
Insightful site=D I am going to take a decent amount of time to think about this website.
You take your time. National Seizure Disorders Foundation will be here to educate and inspire you as you return. Next visit, learn more from additional posts. Take time to get to know NSDF, you never know when you’ll need us.
My Best-
Terrific Tonya Heathco
National Seizure Disorders Foundation
Hi Tonya!
What a nice blog. This is a great place for people in the same situation to go to. Nice job!
Thank you Gary. Keep the site in mind should you or someone you know ever need a place to go for seizure education and support.
Terrific Tonya
Hi Tonya.
Its great to see the support you’re offering people on this site. I remember a few years ago when one of my children was dangerously ill for over a year. Having somewhere to go to share how I felt was key to keeping me going and being emotionally strong enough to support my son.
Best wishes
Anne
Support and education are key in managing seizure disorders. For most seizure patients the journey is not over even after seizure control is maintained. The life long journey of managing seizure disorders is just one reason I have built NSDF and continue to present support and education to patients, caregivers, and professionals. Thank you for your compliments and support.
Terrific Tonya
Hi Tonya-
This is my first time to your site and I love what you are doing here. You are really getting the word out and by the way I love the title of your blog! Fantastic information and I know you are going to help a lot of people. I will definitely help spread the word.
Tony Tate
Tony, Your words are valuable. Thank you for taking time and reading through the information I have for everyone through NSDF website. Thank you for spreading the word. If you need more information or would like to see something specific on the site, just let me know.
Terrific Tonya
Tonya,
I only have four more weeks and then I will be very active for our cause. I will be back in the saddle and aboard for the long journey. We will make this project duplicatable throughout our Country. Your starting the blue print here!
We can establish sites in each town, city and location worldwide. Think Global and Unlimited. God is good all the time. There is no limitations with people like us.
I look forward in strengthening the ranks soon. Lots of love and support. See you soon.
Words I needed to hear Brother Bill. Seizure disorders in my own personal life have brought me to the edge of giving up. Thanks to my good friends( your one of them) and God, I am once again empowered!
We’ll talk when you are ready -
Terrific Tonya Heathco
National Seizure Disorders Foundation
Bringing Order to Seizure Disorders
Hi Tonya,
This sounds like a very valuable website. Educating the public about seizures is a very worthy cause. I wish you lots of luck in this worthwhile endeavor.
Cheers,
Shanae
Shanae, National Seizure Disorders Foundation is swiftly growing into the “go to” place for ongoing education and extensive support in the area of all seizure disorders. I’m enjoying every moment of it and am eager to watch the unfolding every moment. Thank you for your comment and well wishes. Continue to visit to learn more should you need the education in the future. Soon I look forward to the freedom every visitor will feel to show their gratitude by donating their time, energy, and money to National Seizure Disorders Foundation. As you said, a valuable website and worthwhile endeavor.
Blessings -
Terrific Tonya
Hi Tonya,
I’m very happy that we got to connect this week in the TSA.
I’d like to tell you my complete story sometime, but your blog topic hits very close to home. My son was diagnosed with epilepsy when he turned one years old. We are blessed that they are controlled with medicine.
Thanks so much for writing about this topic. It is certainly something that the world needs to understand better as people don’t really understand it.
My Deepest Regards,
James
Pro U recently posted..Today Matters John Maxwell Books
Hi Tonya ~ What beautiful and important work you are doing here. I LOVE what you said in your mission statement about how your organization “bridges the gap from fear and misunderstanding to peace and victory” ~ that is what’s needed and what makes all the difference in the world.
I am lucky to not know anyone with this disorder, but will bookmark your site as a reference should I down the road. Thank you again for all that you are doing!
Beth Allen recently posted..Leadership Nature vs Nuture
Beth, Thank you for taking time to stop in, read what we’re about, and leave a beautiful comment of quality. I appreciate you bookmarking the site for future reference. I’ve heard 1 in every 100 people will either experience a seizure, witness a seizure, or care for someone with a seizure disorder at one point in a lifetime. It’s my belief many more will be affected by seizures. NSDF is on a crusade to bring order to seizure disorders. If you know of anyone needing our assistance,please refer them to the website. If you have any ideas to help me bring in donations in order to gain non-profit status so we can help even more patients and caregivers, please let me know. We’re focusing most efforts on fund raising at this point. We have so many wanting to back NSDF yet waiting on our non-profit approval. Again, thank you for the comment. Blessings – Terrific Tonya
Tonya
It is wonderful that you have taken the time to be such a support to so many in this area of illness.
This looks like an excellent platform to start your crusade. Its such a good idea to have a place where
people can go to to get assistance and information.
NSDF is fortunate to have your support and keep up the great work Tonya..
Irene Pereira recently posted..Building good relationship with friends and familiestakes time and patience
Irene, Thank you for your thoughtful comment. I appreciate the time you took out of your busy schedule to look into NSDF. If you would like to learn more of what we’re about, please visit again. If you have a vision to help worthy causes and feel in your heart it is time to give,please feel free to do so using the donation button on the website.
Blessings – Terrific Tonya, Founder, National Seizure Disorders Foundation
Hi Tonya,
I don’t know anyone with epilepsy, but I discovered early in my adult life that it is possible to have seizures even without having epilepsy. My first husband suffered from a brain tumor. Surgery was risky, and not only did it NOT remove all of the tumor, but it rendered him a left hemi-plegic.
Bob was hospitalized for 17 months before he died. At one point, he was transferred to an acute care hospital for surgery to remove kidney stones. Somehow, during the transfer, someone neglected to write down all of his drugs on the forms. The growing tumor exerted pressure on the brain. I knew he needed certain drugs for seizure prevention, but the nurses couldn’t go on my word alone. The neurosurgeon was in surgery… he didn’t come for two hours. And during that two hours I watched helplessly as my husband suffered countless petit mal seizures.
The neurosurgeon was… irate, to put it mildly… when he was able to get away and tend to Bob. It was frightening, watching Bob suffer those small seizures back to back. But I didn’t know that enough of those would lead to a grand mal, which could easily have been fatal for Bob in his weakened condition.
You’re doing a wonderful work, Tonya… a blessing to many. Keep it up!
Willena Flewelling
Willena Flewelling recently posted..5 Pillars for Success in MLM – Pillar 2
Willena,
Sending you a warm healing virtual hug. I do feel your grief. Thank you for sharing personal details with my readers. Reading your experience helps other caregivers and patients know they are not alone and it helps reveal reality to the non-affected public. I am deeply grateful you posted this tender experience.
I hear so many stories similar to your story. Each story stirs my passion to further educate the public and support the patients, caregivers, and professionals. Your story is important to raise awareness of the abuses of education in the area of seizure patient treatment. With your permission, may I use the experience ( with or without your name) within a future post under Community Voiceon the National Seizure Disorder Foundation website?
It is a fact a person can have a seizure without having epilepsy. Epilepsy is the umbrella term used to encompass seizure disorders whether they have explanation or not. two or more seizures within a year span an the patient is considered epileptic. This is just medical knowledge to enhance your comment. The virtual doors of NSDF are always open to you.
Thank you for your powerful comment -
Terrific Tonya Heathco
National Seizure Disorders Foundation
“Bringing Order to Seizure Disorder”
Hi Tonya:
What an informative site! My oldest daughter went through a time of childhood seizures and thankfully she grew out of them.
Kevin
Kevin Martineau recently posted..The road to hell is paved with good intentions
Oh Kevin, So good to hear the positive report on your daughters seizures. Some seizure patients experience childhood epilepsy and outgrow the seizures. Some seizure patients begin their seizure journey around age 65. Such a complex and mysterious disease. Thank you for posting this comment, it will give readers that have pediatric seizure patients hope. My door is always open should you want to learn more about seizures and NSDF.
Paving the way to a better future,
Terrific Tonya Heathco
“Bringing Order to Seizure Disorders”
Hello Tonya,
I found your website via the TSA and it looks to be an excellent resource for this organization, I send you my best wishes for it’s continued success from France. The flowers in on the site background are delightful
Sadie-Michaela Harris recently posted..Facebook Pages changes- SSL Certificate requirements that you need to know about
Beautiful Sadie,
Thank you for visiting National Seizure Disorders Foundation and for leaving a comment. There’s much more quality content so I invite you back for more in the near future.
Blessings form Tennessee -
Terrific Tonya
Hi Tanya,
What a great positive way to address support for people with seizures. I am sure you are providing a wonderful service to all.
Our connection was a severly autistic cousin. HIs mother went through hell with constant seizures until his death at the young age of 25. Keep up the good work.
John Gaydon recently posted..End Of The World As We Know It
Wow! Thank you John for sharing a bit of your personal story. Thank you for the encouraging and supportive words in your comment. Today was the day I really needed to hear I am making a difference.
Visit Often,
Terrific Tonya
Hi Tonya. You have a wonderful site here, full of color and hope. I actually met a woman who is a friend of a friend, and she had the cutest little siezure service dog. I had never heard of that before, and thought it was such a wonderful idea. It is great work you are doing here.
Wishing you a song in your heart,
Miss Leslie @ Music with Miss Leslie.com
Thank you Miss Leslie for your comment. When you are ready to learn more please come back and enjoy education. If you know of anyone with seizures or anyone wanting to give to our worthy cause, I invite you to offer our site for their viewing. Many do not know this but there is a high chance that everyone will either experience someone having a seizure or experience a seizure themselves sometime during a lifetime. Best to educate yourself and others to avoid fear and abuse of information. When you want to know more, you know how to connect with me:) – Terrific Tonya
Tonya:
This is a wonderful Blog! And very much needed. I have a bit of experience with this as my wife has had 2 grand Mal seizures…The first occurred around 3:30am in 1983…while we were sleeping I knew right away she was having a (We called it Grand Mal ) seizure…In 2002 she had another such seizure at work. These seizures seem to be brought on by undue amounts of stress. Fortunately for us she has found a good medication that does not cause a lot of weird side effects. We also have a good friend who’s 40 year old daughter seems to have chronic seizures since her 20′s that have been hard to treat , I will try to get her connected here.
Take Care
Matt
Thank you Matt for the kind words and for spreading the good news about the availability of information at NSDF. When you do refer someone to the site, point out we have a forum on site ready for use. So good to hear your wife is on a medication that agrees with her and controls her seizures. Please let me know if I can be of more help to you, your wife, and your friends.
Love&Peace,
Terrific Tonya
Aloha Tonya,
What an inspiring blog you have created! I love the look and you’ve done an excellent job of laying out the information. I look forward to hearing more from you in the future!
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Thank you for your positive comment filled with love. Visit often as I post often and will be expanding my posts soon into the caregiver aspect of seizure disorder management.
Hi Tonya! What a beautiful blog! Thanks for creating such a warm, supportive, and informative safe space for those with epilepsy. Great job!!
Lori
Lori Tisot recently posted..I’m Inspired…What Will This Inspire You To Do
Thank you Lori for visiting. Return often and learn more about seizure disorders. Help me eradicate stigma of seizures by growing in knowledge of seizures/seizure disorders and spreading the word to others so that they can grow in knowledge.
Blessings,
Tonya
Tonya,
This platform is amazing, and full of useful information, for all who need support in this area. I have a wife and several friends, with Epilepsy. I have been a care taker, for over 17 years. I have done research for over 30 years, in this field.
It is a wonderful location, where we can share our stories. We can feel, no one is ever alone! We have given up jobs, and time. To take care of our love ones, who are effected by this, disorder. We will never stop loving them, and caring. It is just a warm feeling, to be able to have a platform of like-minded care takers. Serving, with a true heart.
Please, keep on doing all the wonderful work, here! I for one, will spread the knowledge of this location, to the masses.
Thank you for caring, and sharing with us!
William Earl Amis, Jr. III recently posted..Just Get To The Point!
William,
I am honored to read that you were so blessed by the site. Return often as new information is posted regularly. Please feel free to let me know if you have specific request for information to be added to the site. Feel free to become active in our forum. Take a moment and listen to the message on Epilepsy Talk Radio. It’s all there for you and your wife.
Peace&Power,
Tonya
Hi Tonya!
Wonderful work you are doing! Great to meet you through TSA! TSA can bring you more people, so hurry up and get back and dive in! I look forward to learning more about what you do and spreading the word.
Lesly Federici recently posted..Join the Movement
Thank you Lesly for visiting. Return often and bring friends. The site is specific to seizure patients and caregivers, however the general public will benefit from the information also. Please help me eradicate seizure disorder stigma by spreading the word about National Seizure Disorders Foundation.
Peace,
Tonya